The Spina Bifida & Hydrocephalus Association of Canada (SBHAC) would like to invite medical professionals and researchers to apply for a Research Grant based on a project that address the medical issues and treatment of those affected by spina bifida and/or hydrocephalus.

We are now accepting applications for larger and possibly multi-year projects that cover a wider scope of medical research into the treatment and study of spina bifida and hydrocephalus.

Deadline to apply is January 31, 2016.

Research Guidelines and Application 2015 (PDF)

2nd Annual SBHAC Charity Golf Tournament

September 19, 2015
Kingswood Golf & Country Club
LaSalle, Manitoba
 
Shot Gun Start: 8:30 a.m. SHARP
Best Ball Format
 
Registration Fee: $140/golfer ($40 tax receipt will be issued)
Includes Dinner, Prizes and Golf Cart
Hole Sponsor: $300 ($200 tax receipt will be issued)

Click here for poster and registration form (PDF)

To register your team or sponsor a hole, call 204-925-3650 or email names & contact info to:
info@sbhac.ca

PLEASE MAKE CHEQUES PAYABLE TO: SBHAC
Prizes For:

• Best Team
• Most Honest 
• Longest Drive 
• Closest to Pin 
• Silent Auction 
• 50/50 Draw 
• Putting Contest 
• $10,000 “Hole-In-One”
  

The Spina Bifida & Hydrocephalus Association of Canada is interested in attracting a broad representation of active and idea oriented individuals to fill two year terms on our Board of Directors.  

We are looking for committed individuals who are interested in working with current members to fulfill our mission to improve the quality of life of those living with spina bifida and/or hydrocephalus and their families through awareness, education, advocacy and research, and to reduce the incidence of neural tube defects.  Board members serve on committees of their choosing within our organizational structure to ensure the success of existing and future programming.  To be eligible you must be a member in good standing of a Regional or the National association.  If you are not a member, but wish to become one, please contact the SBHAC office at info@sbhac.ca or call 1-800-565-9488.  

The board meets 4 times a year.  Three meetings are held via teleconference and the Annual General Meeting is hosted by the national office in Winnipeg or by one of our regional associations across Canada.  Particular skill sets we are seeking include fundraising, governance, legal experience, financial management, education and human resources.

If you are interested in getting more information about this potential volunteer experience, please email Jody Sabroe, Nominating Chair at Sabroe@shaw.ca or call 780-686-3889.  If you are interested in nominating yourself or someone else, please fill out the attached nomination form (DOCX or PDF ) and return by email and/or mail to our office by July 14, 2015. Elections and/or nominations to the SBHAC board will take place at the AGM which is scheduled for Wednesday, October 14, 2015.

2nd ANNUAL  ONTARIO REGION GOLF CLASSIC – SOLIDARITY WORKS!

Union members and employers came together for the 2nd Annual Unifor golf classic held in Milton, Ontario on June 5, 2015. Over the years union members from the former CEP and now Unifor union have raised an astounding $400,000 through golf tournaments held in support of the SBHAC!

The ON region golf classic draws 300 avid golfers to two courses at the Granite Ridge Golf and Country Club for a round of golf and a delicious dinner in support of SBHAC. Over $25,000 was raised at this year’s event. SBHAC National Manager, Bonnie Hidlebaugh, assisted by SBHAC board members Ken Stickle and Andrea MacBride and volunteer Pat Ginter, helped prepare the registration giveaways and sold tickets for the 50/50 draw. Of course, this tournament only exists because of the enormous amount of work provided by Unifor National Rep Mike Kachurowksi and his able team of union volunteers.

Many thanks to Katha Fortier-ON Regional Director, Scott Doherty-Assistant to the President, David Moffat- Assistant to the President, Bob Orr – Assistant to the President as well as National Executive board members Randy Kitt and Dave Cassidy for participating in the event.

June is National Spina Bifida & Hydrocephalus Awareness Month

Each year, the month of June is the time we designate to raising awareness of spina bifida and hydrocephalus.

Spina Bifida is a neural tube defect which occurs when the spine fails to close properly during the first four weeks of pregnancy. About 85% of babies born with spina bifida will also have hydrocephalus which is an accumulation of fluid on the brain. There is no single known cause for spina bifida or hydrocephalus, but proper nutrition and vitamin supplements before conception can help reduce the risk of neural tube defects.

All women of child bearing age should take a daily multivitamin containing 0.4mg of folic acid in the months before conception, in addition to including natural sources of folic acid such as whole grains, leaf vegetables, fruits and beans into their diet.

NPH -normal pressure hydrocephalus is a condition that affects adults over the age of 55. The symptoms are gait disturbance, incontinence and mild confusion.

The condition is often misdiagnosed as Alzheimer's or Parkinsons. If detected early with a CT or MRI scan the symptoms can be partially or fully reversible.

For more information please contact our office at 1-800-565-9488 or email at info@sbhac.ca.

SBHAC is pleased to announce that our 2nd Annual Bud, Spud and Steak Fundraiser, held April 24, 2015 at the NorVilla Hotel in Winnipeg was a big success.  With a vast array of silent auction prizes donated by our outstanding sponsors and donors, and through the generosity of eager 50/50 ticket buyers, we were able to raise an incredible $15,000!

It was with the support of our major event sponsor, Nestlé Materna Canada that we were able to host this event.  The proceeds of the Bud Spud & Steak provide support services for people and families living with spina bifida and hydrocephalus across Canada, including educational material for clients, medical clinics and universities, bursaries and research. 

And, of course, we would be remise if we didn't thank our awesome attendees.  These are the friends, family, co-workers and volunteers that help make our work possible, and we Thank You for your continued support.

Many thanks to our Donors and Sponsors:

Major Event Sponsor: Nestlé Materna Canada

Antique Motorcycle Club of Manitoba

Assiniboia Downs

Belgian Club

Brematson & Associates

Costco

Jeanne's Bakery

The Keg

Prairie Sky Promotions

Rae & Jerry's Steak House

Richlu Sportswear

Rona

Royal Canadian Legion 107

Winnipeg Blue Bombers

Winnipeg Jets

Wyatt Insurance

George Alevizos

John & Pat Choquette

Judy & Dave Heibert

John Pollard

Tara & David Twerdocleib

Spina Bifida & Hydrocephalus Associations of:

British Columbia

Manitoba

Northern Alberta