Saturday, 25 October 2014

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World Spina Bifida & Hydrocephalus Day E-mail Print

October 25, 2014


The World Spina Bifida and Hydrocephalus Day was held for the first time on 25 October 2012  at the European Parliament in Strasbourg. Supported by the World Health Organization, International Federation for Spina Bifida & Hydrocephalus members from all.

On 25 October 2013 IF celebrated  the launch of their PUSH platform  and met at the European Parliament in Brussels to discuss the importance of access to healthcare. This debate continues in 2014 with IF's Global Campaign.

Does your association plan to organise some activities connected to the World Spina Bifida and Hydrocephalus Day on 25 October? Tell us about it and share your ideas and actions with the SBH community across Canada. Send your stories to info@sbhac.ca.


SBHAC 1st Golf Classic E-mail Print

SBHAC 1st Golf Classic

The golf gods smiled on the 1st SBHAC Golf Classic held at the Kingswood Golf & Country Club in LaSalle, Manitoba on September 7. The weather could not have been better and everyone had a great time.


SBHAC Annual AGM and SBHAC Conference E-mail Print

SBHAC Annual General Meeting & SBHABC Conference "Living Life to the Fullest"

The Spina Bifida and Hydrocephalus Association of British Columbia is pleased to host the SBHAC Annual General Meeting and to present a conference “Living Life to the Fullest”.


Notice for Annual General Meeting 2014 E-mail Print

Notice for Annual General Meeting 2014

Notice is hereby given that the Annual General Meeting (AGM) of the Spina Bifida & Hydrocephalus Association of Canada will be held in conjunction with the SBHABC Conference:

DATE: Saturday – October 18, 2014

The meeting will take place in the Hilton Vancouver Airport Hotel in Richmond, BC for the following

  • To receive and consider the financial statements of the Association as at and for the period ended April 30, 2013, together with the report of the auditors thereon;
  • To elect Directors to fill vacancies on the Board
  • To consider, and if deemed appropriate, to pass special resolutions to confirm amendments to the by-laws of the association
  • To transact such other and further business as may properly be brought before the meeting or any adjournment thereof

Dated at Winnipeg, Manitoba this 28th day of May, 2014. By the order of the Board of Directors of the Spina Bifida and Hydrocephalus Association of Canada.

Quality of life in children with Spina Bifida E-mail Print

Are you are 8 to 18 years old and have Spina Bifida? You can help!

Take part in a Study specially made for young people with Spina Bifida. Your opinion matters to us! You will help improve care for other young people with Spina Bifida! It takes only 20 minutes. Share how you are doing – YOU are the only one who knows! All answers are private.

The study is run by the Division of Pediatric Urology at Riley Hospital for Children.



Great evening of good food, friends and fun!! E-mail Print

Thank you for your support!

Many thanks to all those who attended our Bud, Spud and Steak Fundraiser at the TYC Event Centre at Canad Inn Polo Park on May 30th.

We had great attendance at the event and raised over $11,000.  It was with the help of generous donors and sponsors  that we were able to achieve our goal.  The money raised will be used to support our research, bursary and education programs.

June is national Spina Bifida & Hydrocephalus Awareness Month, a time when women are reminded that taking a folic acid supplement and eating foods rich in folate can reduce the chance of having a baby with a neural tube defect such as spina bifida by 70%.

Special thanks to the following companies and individuals for supporting our cause:


The Belgian Club
Bill Worb Wholesale Furs
Brematson & Associates
Canad Inn Polo Park
Canadian Tire
Costco Wholesale
Marie Deroche
Fleet Galleries
Home Depot
Laura Secord
London Drugs
Manitoba Government Employees Union
Mel & Joy Marsh
Nestle Canada
Prairie Sky Promotions, Terence Hesom
Rae & Jerry's Steak House
Richlu Sportswear Ltd.
Royal Canadian Legion 107
Safety Services Manitoba
Wendy Sol
Spina Bifida & Hydrocephalus Association of Manitoba
Spina Bifida & Hydrocephalus Association of Nova Scotia
Colleen Talbot
The Keg
Unifor Saskatchewan Area Council
Vintage Bling
Winnipeg Blue Bombers
Inga Zahodnik

June is Spina Bifida Awareness Month E-mail Print

What is Spina Bifida?

Spina Bifida is the #1 physically disabling birth defect in Canada.  If affects about one in every 1300 babies born.  It is classified as a neural tube defect (NTD) and occurs in the first four weeks of pregnancy.

Spina bifida is the incomplete development of the nervous system and spinal cord.  It results in varying degrees of disability from loss of sensation, bladder and bowel dysfunction to permanent paralysis. 

It is generally classified as follows:

  • Myelomeningocele – is the most severe and most common in which the spinal cord and the meninges (covering of the spinal cord) protrude from an opening in the spine to form a sac.
  • Meningocele – is considered a less severe and rarer form of spina bifida. The meninges are pushed through an opening in the spine to form a sac containing cerebrospinal fluid (CSF) which is often covered by skin.  The spinal cord itself remains in the protective bone tube.
  • Lipomyelomeningocele- is an abnormal fat accumulation that starts below the skin and extends through an opening in the spine to the spinal cord.  The skin covered lesion created is found in the buttock or lower spine area, and is usually not painful.
  • Occulta – which means “hidden” is the mildest form of spina bifida.  A defect exists where one or more vertebrae are not properly closed, but there is no protruding sac or protrusion of the spinal cord.

Although researchers are working hard to find the cause(s) of spina bifida, there is NO CURE.

FOLIC ACID is the only preventative measure in reducing the number of pregnancies affected by spina bifida.  All women who are trying or could become pregnant should talk to their doctor about taking a multi-vitamin containing at least 0.4 mg of folic acid every day.

National Bursary Program - updated for 2014 E-mail Print
The Spina Bifida and Hydrocephalus Association of Canada is pleased to introduce the National Bursary Program for people with spina bifida and/or hydrocephalus.

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