We are looking for volunteer writers to work with our communications team in developing content for the new SBHAC.ca website. We are looking for experienced writers with a basic understanding of the non-profit world and an understanding of the web. A good understanding of Spina Bifida and Hydrocephalus would be beneficial.
The deadline for submitting application for a research grant for the 2013-2014 fiscal year is February 28, 2014. Follow this link to download the guidelines and application. All applications should be mailed along with supporting documents to the attention of: Bonnie Hidlebaugh SBHAC 647-167 Lombard Ave, Winnipeg, MB R3B 0V3.
If you have any questions please call Toll Free 1-800-565-9488.
Quality of life in children with Spina Bifida
Will my child’s life be better after this surgery? Quality of life in children with Spina Bifida.
The Division of Pediatric Urology at Riley Hospital for Children is currently developing a questionnaire for children, teens, and adults with Spina Bifida to allow us to measure the quality of life of our patients. This questionnaire will help us understand if patients are doing better in certain areas of their life, or struggling in others. We want to improve the quality of life of our patients. If you (or your child) had Spina Bifida surgery on your spine as a newborn, you can help!